Dravet Syndrome UK Dravet Syndrome UK is the only charity dedicated to changing the lives of those affected by Dravet Syndrome in the UK. We achieve this through our 3 aims:
1) Funding medical research into Dravet Syndrome.
2) Raising awareness of Dravet Syndrome within the medical profession.
3) Supporting families affected by Dravet Syndrome practically, emotionally and financially.
Dravet Syndrome is a life-limiting neurological condition causing severe, difficult to control seizures, alongside varying degrees of learning disability and other issues, such as autism, mobility problems, speech difficulties and feeding problems.