The Duchenne Family Support Group We are a very small charity that supports families across the UK with a child or young adult with the life-limiting condition Duchenne Muscular Dystrophy. This condition means that the affected person is in a wheelchair usually by the age of 9 or 10, in the later stages is reliant on an electric wheelchair, and have cardiac and respiratory problems amongst other things. However, many go on to live independently and achieve at university although needing a lot of support and care. We support the families via a helpline, newsletter and we have subsidised days out and holidays where families can meet up and talk to others in the same situation.
