SOFT UK SOFT UK was founded by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.
We:
Aim to provide the most up-to-date, relevant information on Trisomy 13 and Trisomy 18.
Support families at every stage of their journey; through pregnancy, when caring, after a loss, expecting a new baby and beyond.
Raise awareness about Trisomy conditions on our communities.