The Sandcastle Trust There are more than 6,000 genetic conditions. Each one affects less than 0.1% of the population but together they are one of the greatest causes of disability and early death, affecting three million families in the UK. (source: National Human Genome Research Institute)
Many are life-limiting, all are life-changing.
The Sandcastle Trust supports people of all ages living with a diagnosis of a rare genetic condition, to build lasting positive family memories and strengthen their family relationships, through the provision of bespoke family respite. We call these Sandcastle Memories.
