NCBRS Worldwide Foundation The NCBRS Worldwide Foundation is a nonprofit organisation that aims to support and educate families, carers and professionals who work with people diagnosed with NCBRS. Together they work to promote awareness and understanding of the syndrome. They advocate for scientific research that increases the medical knowledge of Nicolaides-Baraitser Syndrome and best treatments.
Their Vision is to create a global community where families, healthcare professionals and researchers work together to ensure that every person diagnosed with Nicolaides-Baraitser Syndrome has every opportunity to reach their full potential.